I am behind on my writing. It’s not surprising after saying goodbye to Blitz that my heart hasn’t been in it.
I have plenty of distractions since life doesn’t stop for NaNoWriMo. What? Shouldn’t everything come to a halt during the month of November?
Drama happens, games go on, tv shows continue, pets get sick, doctors appointments happen. Life happens. Still I am only a bit behind. Even after days of avoidance.
Once I hit 50,000 words this month it is my intention to shoot for 80,000 so another half a month and then I can start rewriting. I got this book filled with writing exercises to inspire me and keep me going.
The Topiramate seems to be working. I no longer have daily migraines or dizziness and the migraine aura is gone too.
It’s been just over a month since I began taking 50 mg per day. I experienced some of the side effects like tingling/numbness in my hands, but I am used to that sensation already. The brain fog worsened temporarily, but seems normal now. The two side effects I wanted; weight loss and sleep; didn’t happen. If anything I was hungrier.
But I’ve only had 3 migraines since beginning the medication and the daily dizziness is gone. That makes it all worth it. I might have lived with the pain, but the dizziness was too much on top of the Ménière’s.
I hope Topiramate continues to work for me. I am so happy that it is.
The best way to explain to someone without a chronic illness how a person with chronic illness functions is different for everyone.
But let’s say every task you take for granted requires energy.
Getting out of bed
Going to the bathroom
Brushing your teeth
Brushing your hair
Let’s say you only have 15 units of energy a day. You’ve already used 8. If you have to prepare those meals that’s three more. That only leaves 4 bits of energy to do other things. Work may use up the rest and then some causing a chronically ill person to crash when they get home.
You say it doesn’t work that way! But it does when you’re chronically ill. You might have more energy one day and less another or a task might use up more than normal. It all depends on how you feel on any given day.
Everyone is different and each situation is different. Don’t judge others because you see me traveling. I am bad at showing the bad days. I have been trying to get better.
Normal people don’t require energy to get their day started, but a chronically ill person sometimes needs a lot of energy just to get out of bed. Think about trying to move after a day at boot camp and drinking that night. Many people with fibromyalgia feel like that on a daily basis and there are other things that make people feel worse.
I hope I have explained this for you if I haven’t, look up The Spoon Theory. Perhaps another perspective would help.
Many people don’t realize this. Probably not even my husband, but even when my Ménière’s was in remission, I still had pain. The Fibromyalgia never entirely left.
The level varies from faint to I don’t want anything touching my skin. Lately, I am in the phase where I just my clothing on my skin hurts. Between that and the fatigue it’s been hard to get anything done. I know the abrupt weather change brought on this bought of fibromyalgia.
I actually prefer being in control of my flares. Like walking around Disneyland. However, being in better shape helped and I didn’t flare from that. It’s the little things. I, also, took breaks when needed and we made it an early day.
Muscle pain is one of the easiest types of pain to hide for me. So, people aren’t aware. I won’t have an vertigo attack due to fibromyalgia, so it’s not necessary to explain it to everyone like I do Ménière’s.
I guess what I am trying to say is just because someone doesn’t speak of something, it doesn’t mean they never had it.