Lichen Sclerosus

I have had Lichen Sclerosus much of my adult life. I just didn’t know it. I was treated for yeast infections time and time again. Sometimes, I did have a yeast infection. Many times I didn’t, since the treatment didn’t work.

What is Lichen Sclerosus? It’s a vulvar disease characterized by white thinning tissue or red areas that itch. It’s painful. The scarring changes the shape of the vaginal wall and area around it. For me it affects my anal area too.

Wikipedia says Lichen sclerosus (LS) is a chronic, inflammatory skin disease of unknown cause which can affect any body part of any person but has a strong preference for the genitals (penis, vulva) and is also known as balanitis xerotica obliterans (BXO) when it affects the penis. Lichen sclerosus is not contagious. There is a well-documented increase of skin cancer risk in LS, potentially improvable with treatment. LS in adult age is normally incurable, but improvable with treatment, and often gets progressively worse.

We were talking in group about biopsies. Numbing is not always a complete lack of feeling. When I was diagnosed in my 30’s, I had a biopsy to rule out cancer. The discovered the LS, and fortunately I was not pre-cancerous. It was painful and at the time I thought the numbing didn’t work, because I felt it. Though hours later when the numbing wore off, the pain was excruciating.

Indeed, when I had a biopsy on a mass in my ovary in my fifties without any numbing… Well let’s just say that the first time the numbing worked.

I always recommend females know what they look and feel like in their vaginas, so they are aware of changes. Getting this under control is crucial.

I use clobetesol and it has been effective at controlling my LS. I use neutrogena soap, I pat, don’t rub, resist the urge to scratch (this is hard), wear cotton underwear, loose fitting pants (hard with my fluctuating weight) and I was told not to soak in water. The latter some of the women in my group use various kinds of soaks. I have followed my routine for 20+ years and my scarring has been minimized and returned to almost normal, so I have found what works for me.

I had been in remission for awhile until recently. Still it’s just a mild nuisance.

Love, Peace and Light! Rita

Published by My Crazy Life

My husband, Ralph, and I are on an amazing adventure together. We’d like to share our life with you. We are determined to enjoy our life despite my health issues. I have Ménière’s Disease, migraines, asthma, Fibromyalgia, Lichen Sclerosis and osteoarthritis. My goal is to help others see they too can lead a wonderful life.

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