My Meniere’s Journey

I started having strange vertigo in which I felt like I was spinning. This turned out to have nothing to do with Meniere’s. It was my reaction to cow’s milk and wheat. Also, mini spins… which is MD. These are quick, albeit, annoying vertigo usually only a rotation. No, after effects with these.

In May 2018, I had a full blown attack as I mentioned earlier. This was accompanied with nausea, extreme loss of balance and disequilibrium. The attack started with one of my drop attacks, but this time I did fall because I went in door opening. Once Ralph helped me up, I went into full blown vertigo which lasted from 3 am until about 11 am. I was stuck upstairs until my brother got up, because my balance was so bad it wasn’t safe to try the steps on my own. My balance remained bad for a couple of days.

The past few months I started having short vertigo almost like the mini spins, but more violent. My balance is all over the place. At least it feels like it is. Ralph doesn’t see it, but a friend grabbed my arm as we were walking. So maybe he’s just used to it. I tip over even when I am just standing.

Probably one of the worst things is that the drop attacks seem to be clustering. I’ll have 2 or 3 a week and then nothing. The last one wasn’t my typical drop attack where I get slammed backwards. This time, I had just finished putting a bag in the vacuum cleaner and I fell sort of off to my left side. No warning… no nothing. One minute I was standing, the next I was down. It took me a second or two to respond. The dogs were licking me, my iWatch was beeping wanting to know if it should call a squad. This is what I told my doctor and why I no longer have a driver’s license.

Lately my tinnitus is extremely loud. The cicadas are often joined by other sounds. My left ear is as loud as my right ear. Today both ears are full. I have noticed lately, I have to turn the volume up.

I hope this helps you understand Meniere’s. If you are just starting on this roller coaster ride, I am sorry. Live on the good days, rest on the bad days. Tell me about your journey.

Love, Peace and Light! Rita

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