A Good Day

Actually I’ve had several days of feeling okay. But what does a good health day look like or feel like?

The general dizziness that plagued me for what seems like months is gone. I still get little bouts of vertigo. And yesterday I had a bigger bout which I managed to control with a Valium that knocked me out.

I am weird and it only knocked me out for about an hour give or take. When I woke up my head felt much better. I wrote with my peeps from the House of Ink. Watched some tv with my hubby. Went to see Hamilton and came home to watch the World Series. The end of which I watched in bed. I was exhausted. But our Astros won so all is good. I even made chili in the crockpot which was awaiting us on our return from the matinee.

Even on good days like yesterday I had vertigo, balance problems along with the usual aches and pains of fibromyalgia and osteoarthritis. Unless the pain is unbearable I ignore it. What else can I do if I want to enjoy my life?

That is what a good day looks like. I am not 100% healthy and don’t try to overdo things, well except for Disneyland… (If we go again I may get a wheelchair.) I did overdo that 2 weeks ago, but I knew the consequences. I simply have to ask myself “Is it worth it?” If the answer is yes, then I will take the down time the following days.

Despite the vertigo, I feel better lately. And that for me is a win. The fact that I haven’t had a vertigo attack that lasts for 12 hours is a plus. Hopefully I am past that stage. Live on the good days and rest on the bad days.

Love, Peace and Light! Rita

https://mycrazylife2go.com

A Good Day

Actually I’ve had several days of feeling okay. But what does a good health day look like or feel like?

The general dizziness that plagued me for what seems like months is gone. I still get little bouts of vertigo. And yesterday I had a bigger bout which I managed to control with a Valium that knocked me out.

I am weird and it only knocked me out for about an hour give or take. When I woke up my head felt much better. I wrote with my peeps from the House of Ink. Watched some tv with my hubby. Went to see Hamilton and came home to watch the World Series. The end of which I watched in bed. I was exhausted. But our Astros won so all is good. I even made chili in the crockpot which was awaiting us on our return from the matinee.

Even on good days like yesterday I had vertigo, balance problems along with the usual aches and pains of fibromyalgia and osteoarthritis. Unless the pain is unbearable I ignore it. What else can I do if I want to enjoy my life?

That is what a good day looks like. I am not 100% healthy and don’t try to overdo things, well except for Disneyland… (If we go again I may get a wheelchair.) I did overdo that 2 weeks ago, but I knew the consequences. I simply have to ask myself “Is it worth it?” If the answer is yes, then I will take the down time the following days.

Despite the vertigo, I feel better lately. And that for me is a win. The fact that I haven’t had a vertigo attack that lasts for 12 hours is a plus. Hopefully I am past that stage. Live on the good days and rest on the bad days.

Love, Peace and Light! Rita

https://mycrazylife2go.com

Fibromyalgia

Fibromyalgia is a whole syndrome of symptoms. It is characterized by pain.

Saturday at Disneyland

The Mayo Clinic says the symptoms are:

  • Widespread pain. The pain associated with fibromyalgia often is described as a constant dull ache that has lasted for at least three months. To be considered widespread, the pain must occur on both sides of your body and above and below your waist.
  • Fatigue. People with fibromyalgia often awaken tired, even though they report sleeping for long periods of time. Sleep is often disrupted by pain, and many patients with fibromyalgia have other sleep disorders, such as restless legs syndrome and sleep apnea.
  • Cognitive difficulties. A symptom commonly referred to as “fibro fog” impairs the ability to focus, pay attention and concentrate on mental tasks.

Fibromyalgia often co-exists with other conditions, such as:

  • Irritable bowel syndrome
  • Chronic fatigue syndrome
  • Migraine and other types of headaches
  • Interstitial cystitis or painful bladder syndrome
  • Temporomandibular joint disorders
  • Anxiety
  • Depression
  • Postural tachycardia syndrome

When mine was at its peak I felt like I had the flu. My tag line was I’m sick and tired of being sick and tired.

Though I get flares now and then, I had forgotten that it made me feel like I had the flu. After a fun day at Disneyland, I woke Sunday feeling like I had the flu. I wanted to cut my entire head off. But with encouragement from my husband I dragged myself out of bed, took a shower so we could go to California Adventure. The more I moved, the less that flu feeling bothered me.

A smile hides the pain. My legs on other hand are still sore today. But I had fun. That’s the important thing. It’s a trade off. I will relax as much as possible now that I am back home.

Sunday at California Adventure.

I think this picture from the Incredicoaster is the most accurate about how I felt. I tend to hide this most of the time. This look was definitely from being slammed by the roller coaster, but fibromyalgia makes me feel much the same.

Love, Peace and Light! Rita

https://mycrazylife2go.com

Change of Plans

I got ready and even made it to church. However, vertigo and overall dizziness has me sitting in the car while my husband attends.

I am not willing to risk a full blown attack in church. I think the nystagmus is acting up because I am seeing trails. (Not exactly like I’m the picture below. (Though if I moved a lighter in front of me it would look like it.) Mine are more like after images of whatever moves in front of me. Does anyone have this problem?

Yesterday I went to a race and though I would love to attend the NASCAR race today, I think I’d not make it through. Yesterday was the first day without brain fog for about a week. So far no brain fog today. (Though it has a sneaky tendency, not like last week when I noticed it all the time.) I felt my head was broken last week.

Me in front.

It pays to be flexible when having a chronic illness and for those around you to understand. Changing plans or canceling plans happens frequently. So far I haven’t lost any friends over it. There have been naysayers who don’t believe that I am “sick”, but not my friends.

I try to avoid those people. Sometimes it’s not possible when they are family. It’s not always possible to hold my tongue, though I am getting better at avoiding situations which trigger my anger.

Love, Peace and Light! Rita

https://mycrazylife2go.com

Brain Fog

Lately my head is broken. I can’t remember anything. It’s difficult to think. Or even remember words. Forget about trying to recall any important information.

What is brain fog? A loss of cognitive function, so-called “brain fog.” This term is used to describe a range of symptoms that may produce difficulty thinking, feeling slow, confusion or forgetfulness.

According to Healthline: Brain fog is a symptom that can be caused by stress, sleep changes, medications, and other factors. It can cause confusion, memory issues, and a lack of focus.

Different things can cause it. In my case fibromyalgia, depression & Meniere’s Disease are the culprits. But many conditions cause it. The latest is COVID related. No matter what caused it, it is one of the most frustrating things.

Healthline suggests:

Home remedies to improve brain fog include:

  • sleeping 8 to 9 hours per night
  • managing stress by knowing your limitations and avoiding excessive alcohol and caffeine
  • exercising
  • strengthening your thinking abilities (try volunteering or solving brain puzzles)
  • finding enjoyable activities
  • increasing your intake of protein, fruits, vegetables, and healthy fats

Treating the underlying cause will help. For me it comes and goes. Lately though it’s been persistent. The frustration it causes can cause anxiety which in turn could cause brain fog. It’s a vicious cycle. Learning relaxation and other techniques to calm your mind is beneficial.

In the meantime I continue to try to keep calm when it frustrates me. I will wait it out with my word games.

Love, Peace and Light! Rita

https://mycrazylife2go.com

Why Me?

I hear that question all the time. My answer is why not me. It’s not as if we have much choice when it comes to health.

Oh sure, you can eat healthy and exercise, but that doesn’t always help. When it comes to flares, I seem to get it all at once. Lichen Sclerosis, fibromyalgia, Meniere’s Disease, etc.

I am uncomfortable all the time. I itch & burn, ache and am dizzy most of the time lately. But you know what? I handle it. Usually you won’t notice I don’t feel well. Unless you see me tilt or walk while a mini spin (short vertigo attack). I’m sure strangers think I’m drunk.

Which is funny because I am off alcohol until my ulcer is gone and I have an operation to fix the hiatal hernia. It’s a good thing I only enjoy drinking, I don’t need it. I do miss my Monday night wine with my friends from Ohio.

Despite how I feel, I still do things. I refuse to let my health stop me from living. However if I am really bad, I stay home. I won’t put myself in situations that will make me miserable.

Fortunately, Ralph understands this. I am lucky to have married the best man. I’m sure it can’t be easy. But he tries to be supportive.

So why not me? I can handle it that’s why me.

Love, Peace and Light! Rita

https://mycrazylife2go.com/

Celebrex

A couple of years ago my family doctor put me on Celebrex in the hopes it would help my osteoarthritis. Things got worse. I figured I was in a flare.


Celecoxib

Brand name: Celebrex

Nonsteroidal anti-inflammatory drug

It can treat pain.


My gastroenterologist told me to stop taking the Celebrex as I am having issues in my stomach and esophagus. I did as asked.

About a week in I noticed that my fingers didn’t hurt as much. At this point I didn’t get the correlation. I looked up lesser known side-effects. Joint or muscle pain or stiffness, inflammation, muscle pain increased, muscle stiffness are just a few things I experienced on it.

The best medication I ever had for my arthritis was Vioxx, but sadly it’s side effects for others was death.

I am not going back on Celebrex. I’ll probably stick to Tylenol. I am not saying if you are on or going on that you will have these problems, I am just telling you my experience. It helps more people than it harms.

Love, Peace and Light! Rita

https://mycrazylife2go.com

Fatigue

I absolutely hate fatigue. Especially if I haven’t done anything to cause it. Many people don’t understand fatigue, they think being tired is fatigue. Fatigue is feeling overtired, with low energy and a strong desire to sleep that interferes with normal daily activities.

I have been nursing my knee, so I haven’t done much at all. I went to a paint class last night, but sat on my butt most of the time.

Welcome home family!

Today my knee hurts badly when I thought it was getting better. So elevating and icing the knee has been beneficial since I could also sleep. I’ve spent most of the day sleeping or reading.

And I am still tired. I wish there was something I could take to stop fatigue, but if it’s out there my doctor hasn’t suggested it.

Love, Peace and Light! Rita

https://mycrazylife2go.com

Surprises aren’t always good.

Have you ever popped your knee out? I think that’s what I did. Last Monday I had just climbed the stairs and was halfway to my bedroom when I felt excruciating pain in my knee. Somehow I managed to hop to my bed. My right leg wouldn’t support me at all.

Surrounded by my pups with demon dog on top of bad leg.

I called my husband, asked him to bring my cane because I couldn’t walk. I needed to get ready for bed. He was upstairs quickly.

I tried the cane using my right hand, where I usually carry it to keep me balanced. That didn’t work at all. When I tried the left side I could hobble to do what I needed. Sleep was difficult because the pain wouldn’t let up.

I learned something new. Use the good side.

Tuesday I made it downstairs and made an ice pack. I sat in my recliner with a pillow under my leg to elevate it and the ice pack on top. This brought the pain level to manageable.

I rested it all week with ice packs when it throbbed. Yesterday, I went to church and then to the in-laws. My knee wasn’t happy. I used an ice pack and was able to fall asleep.

Today shall be interesting as we are going to Battle for Vegas, a charity softball game, put on by Reilly Smith. The Vegas Golden Knights face off against the Las Vegas Raiders. We had a blast last year. I know it will be fun again. I just hope my knee will forgive me.

Love, Peace and Light! Rita

https://mycrazylife2go.com

Flare

You can’t tell, but I am in a flare. Fibro, osteoarthritis and Meniere’s. My body aches,balance is off and my knee is so sore walking is difficult.

Why did I go to this meet and greet/signing on Sunday? Because I want to support my Vegas Golden Knights and any charity that they support. In this case it was for the Firefighters Association.

I met people and enjoyed myself while I waited to get inside. Danil Miromanov is a sweetheart.

On Independence Day we went tv shopping. I made it though I was exhausted. Even managed to carry an old tv downstairs. Man that thing was heavy. And being in a fibro flare my muscles are nonexistent. The new tv is set up in the living room and the old downstairs tv is upstairs. Despite the those two being bigger they were much lighter than our previous bedroom tv.

While in a zoom meeting with friends from around the country fireworks began. Mind you our meeting is from 5 pm- 6 pm. The fireworks stopped around 2:30 am. At least my street wasn’t a total war zone this year. I could look out the window to see the unauthorized fireworks in the neighborhood though.

My friends invited me to see David Copperfield. I love magicians. I saw David many years ago in Athens, Ohio while I was in college.

He puts on a great show. He didn’t disappoint last night. Pictures and video aren’t allowed. Despite looking at how the tricks worked, I couldn’t figure them out. Maybe the one where he predicted what would happen. Maybe?

I slept well last night. That’s unusual for me. Sleep and I parted ways many moons ago. My cats woke me up to eat this morning. Despite my sleep I am exhausted. Fatigue is one of the fibro symptoms that makes things difficult for most. Fortunately, I can rest today.

There is always a price for having fun. Since I want to enjoy life, I gladly pay the price. Rest on the bad days and so-so days, but live on the good days and sometimes the so-so days too. Learn your limitations, but don’t deny yourself a life of fun.

Love, Peace and Light! Rita

https://mycrazylife2go.com