Weather Changes

Our weather dropped from the 90’s into the 60’s after wind blew a cold front into the Las Vegas Valley. Two things that affect my Meniere’s and Fibromyalgia… really most of my illnesses is weather and pressure changes. Wind in particular will give me a migraine, dizziness and vertigo.

BITMOJI

This time I didn’t get a migraine, but I had the light sensitivity, the tiredness and the floaters. Also, I have been dizzy for days with intermittent vertigo. I am thankful that it’s not lasting most of the day. I have been sorer than normal which is triggered by rapid weather changes.

I am not going to complain. It’s just a fact of life. I did what many of us with chronic illness do… Self-care. I took naps, rested and did things that bring me joy. Like reading when I could.

My husband doesn’t always understand and had a things planned in the weekend. The only thing I ended up doing was going to Shake Shack for donation day. It benefited Robin Lehner’s #metoo charity. Since I worked in Mental Health and live with from depression and anxiety it was a delicious way to support the charity.

Shake Shack has gluten-free buns, so I was able to have a burger that I could hold in my hands. They don’t have dairy-free shakes, so I drank water. I could have gotten one of their lemonades, but decided that I didn’t need the sugar.

I am still in a flare, but I feel better today. So far no dizziness or vertigo, but I am still in bed. It’s time for me to get up and attempt yoga. I had to skip a couple of days this week. I got through a slower practice yesterday.

How are you all?

Love, Peace and Light! Rita

https://mycrazylife2go.com

My sweet little vampire cat has been missing for over a week. We’ve looked everywhere. Followed up on leads. No Blaze anywhere.

I don’t really have the words to explain how much her absence has affected me. There is a void in my life. I hope someone sees one of my posters and returns her.

We’ve looked in our neighborhood and in other neighborhoods. We’ve checked the shelter. I keep hoping someone will check her chip and call me.

I miss Blaze.

Love, Peace and Light! Rita

https://mycrazylife2go.com

Fibro Flare

Last weekend’s trip has taken a toll on me. Combine that with my rationing my Advair to make a weeks worth last a month, I still haven’t recovered.

Fibromyalgia reared its ugly head and my entire body is tender and sore. We got home late on Tuesday, I was planning on staying at the house in Sacramento until the movers arrived on Friday. Surprise, surprise they arrived on Tuesday.

Ralph was about two hours out when I got the call. Since I didn’t want to sleep on the floor, he came back for me. I scurried around getting packed up. When Ralph arrived we removed some things from the car to make room for me.

Suffice it to say all of this has put me in a fibro flare. We have one thing left in the house to get to be delivered to friends. That is happening this weekend. We are going on the road this afternoon.

I don’t know when I’ll recover from this flare. I am exhausted. It’s difficult to get others to understand that I cannot do this. Still I persevere on.

Love, Peace and Light! Rita

https://mycrazylife2go.com

Brain Fog

What is brain fog? Here is a definition from Google: Brain fog is characterized by confusion, forgetfulness, and a lack of focus and mental clarity. This can be caused by overworking, lack of sleep, stress, and spending too much time on the computer.

Brain fog is one of the most frustrating parts of being chronically ill. For instance, I lost my Advair. I looked everywhere since I was positive I packed it. I remember taking the new one from its package and putting it with my other one before I packed for my trip last week. Once there, I couldn’t find it. I searched my suitcase and the house where we stayed. I searched the car and my purse. Nada.

I have been trying to figure out how I would breathe for the next 30 days. Today, it dawned on me that I packed my nebulizer and the Albuterol for it. These are in silver packages like my Advair. Thankfully, when I checked where I keep them, my Advair was there.

This is brain fog… it’s frustrating and unpredictable. Unless I am struggling for words, I don’t realize I have it. Until, I find myself putting my cereal in the fridge or worse my clean dishes in the freezer instead of the cupboard.

I am just glad I found my medication. My biggest fear is being unable to breathe.

Love, Peace and Light! Rita

https://mycrazylife2go.com

Think Positively

If I had a penny for every time someone told me to think positively, I’d be rich. And if positive thinking could actually cure me I wouldn’t have a chronic debilitating disease and other issues.

Unfortunately it is not a cure. And all people actually accomplish is to make me feel bad that I am not strong enough to overcome Meniere’s Disease. I know that it’s not my fault just as I know that positive thinking won’t make me feel better. It just makes me better able to accept my life as it is.

So many people offer advice, but they don’t have Meniere’s. They may have had vertigo or tinnitus, and something may have worked for them, but none of us are the same and a chronic debilitating disease isn’t easy to fix, otherwise it wouldn’t be a chronic debilitating disease.

So, before you offer advice to someone do your research to find out what works. Don’t just say think positively or use ginger or whatever your cure is. Don’t you think that I have tried everything aside from getting injections in my ears and having a labyrinthectomy that destroys the hearing and vestibular functions of the ear. I am bilateral so those aren’t an option.

I choose to take one day at a time and not worry about what may happen. Getting rid of the stress have been the most helpful advice that my doctor gave me.

I hope this helps those with “helpful” advice think twice before saying anything.

Love, Peace and Light! Rita

https://mycrazylife2go.com

Insomnia

I usually wake up frequently and have trouble falling asleep at night. I’ve tried many things to improve. Melatonin, Relaxation, Exercise, Trazodone… I have been doing better most nights.

Last night I couldn’t sleep. I rested which will help me get through the day. I do not know what brought this on.

Yes, that is a dog above my head.

Facty Health has a very good description of the symptoms.

  • Difficulty falling asleep
  • Waking up during the night
  • Waking up earlier than usual
  • Still feeling tired after a long sleep session
  • A lack of energy and tiredness during the day
  • Anxiety
  • Depression
  • A lack of focus
  • An increased chance of error or accident
  • A reduced memory

Personally I think that anxiety and depression may be the cause rather than a symptom. It’s one one of those situations like which came first? The chicken or the egg.

Today I may end up taking a nap. I am that exhausted. Usually, I try not to nap unless I am not feeling well, because I sleep better at night.

Do you have trouble sleeping? If so what helps you sleep?

Love, Peace and Light! Rita

https://mycrazylife2go.com

Listen to your body…

One thing I have learned in the 20+ years of dealing with chronic illnesses is to listen to my body. I know if I push things it will get worse.

I have lots of good days, since I learned this. As a result my downtime has lessened. Because I don’t have a job, I can do this easily. If I wake up and feel like death warmed over, I am going to take it easy.

I am back to exercising most days. Again this is where I need to listen to my body. If I don’t feel well then I either do a short yoga practice or do nothing.

I have created an office space with room to exercise. Blaze (my cat) exercises with me. It was always easier to get motivated when you have friends, so Blaze has stepped up into that roll.

The top picture shows her acting as my writing muse. She is a multi talented cat. I really don’t know what I would do without her.

She’s is a my therapy cat when I feel down. How can one remain sad when you have this beauty to cheer you up? But I digress.

I cancel dinners with family when I feel off. They may not totally understand, but I don’t let guilt get in the way. Sometimes staying home by myself is preferable to interacting with others when my head feels off.

Meniere’s isn’t something people can understand easily. But with tinnitus (cicadas) taking up residence in both ears 24/7/365 if my head feels off too, then I would not be good company. Even if everyone left me alone being at someone’s house and not my own is more stressful.

As we all know stress and anxiety can exacerbate our symptoms and I have no desire to try to trigger everything at once. It’s been awhile since all my issues coincided at the same time. And I want to keep it that way.

Right now I am having a Lichen Sclerosus flare and a little fibromyalgia stuff going on along with the usual Meniere’s balance issues. I definitely handle it all better when I am at home.

What works for you?

Love, Peace and Light! Rita

https://mycrazylife2go.com

Listen to your body…

One thing I have learned in the 20+ years of dealing with chronic illnesses is to listen to my body. I know if I push things it will get worse.

I have lots of good days, since I learned this. As a result my downtime has lessened. Because I don’t have a job, I can do this easily. If I wake up and feel like death warmed over, I am going to take it easy.

I am back to exercising most days. Again this is where I need to listen to my body. If I don’t feel well then I either do a short yoga practice or do nothing.

I have created an office space with room to exercise. Blaze (my cat) exercises with me. It was always easier to get motivated when you have friends, so Blaze has stepped up into that roll.

The top picture shows her acting as my writing muse. She is a multi talented cat. I really don’t know what I would do without her.

She’s is a my therapy cat when I feel down. How can one remain sad when you have this beauty to cheer you up? But I digress.

I cancel dinners with family when I feel off. They may not totally understand, but I don’t let guilt get in the way. Sometimes staying home by myself is preferable to interacting with others when my head feels off.

Meniere’s isn’t something people can understand easily. But with tinnitus (cicadas) taking up residence in both ears 24/7/365 if my head feels off too, then I would not be good company. Even if everyone left me alone being at someone’s house and not my own is more stressful.

As we all know stress and anxiety can exacerbate our symptoms and I have no desire to try to trigger everything at once. It’s been awhile since all my issues coincided at the same time. And I want to keep it that way.

Right now I am having a Lichen Sclerosus flare and a little fibromyalgia stuff going on along with the usual Meniere’s balance issues. I definitely handle it all better when I am at home.

What works for you?

Love, Peace and Light! Rita

https://mycrazylife2go.com

Everything’s Connected

I have mentioned that our air quality has been poor due to smoke drifting into our valley. This has not only affected my breathing, but my allergies too. Throw in Meniere’s Disease vertigo and I hit the trifecta.

My usual allergy meds helped my sneezing, but I still managed to cough up gunk. So definitely sinuses were involved. When the world started moving without me, I took Valium.

It helped the vertigo, but it did not make me sleepy. Sleep would be nice when I feel like my head is out of sorts. It’s hard to explain the feeling. Kind of feels like it’s stuffed with jelly. It’s an odd feeling. Everything seems to be off kilter.

It took a few days to escape that feeling. I didn’t go into my full blown vertigo attack, just the spins. My balance is shot, but I think I may be the only one who notices. Walls are my friends. I am used to tipping. Maybe I should sing I am a little teapot and say, “tip me over and pour me out” when I tip? Of course I am too busy trying not to fall that I forget to make a game of it.

I hope this round is done for a bit. I have things to do. I am nearly finished with this round of edits in my novel, but it’s been hard to concentrate lately.

Love, Peace and Light! Rita

https://mycrazylife2go.com

The Day After

Wow after being out in the smoky air on Tuesday evening, I have felt like I cannot breathe. My lungs felt tight and my throat was raspy at least it felt that way.

You can see how smoky it was.

I stayed in all day. Used my inhaler to no avail. Finally before going to bed I used my nebulizer. Hopefully, I will feel better.

The air quality is still only moderate today. My lungs feel good so far. But having fun outdoors wasn’t worth the near panic I felt when I thought my throat was closing up.

I have had asthma attacks in the past where I had to go to the hospital and I never want a repeat. Having a nebulizer on hand is a good idea.

Love, Peace and Light! Rita

https://mycrazylife2go.com